Advocacy, Multiple sclerosis

Orange crush

It's MS Awareness Week, and I've nearly succeeded in proudly donning our signature color every single day. Funny how orange, which I once associated with the MS prison I felt locked up in, now has a different connotation. I see the color as one of power, strength, resilience, solidarity. I wasn't able to make it… Continue reading Orange crush

Multiple sclerosis, Treatment

Hit me with your best shot: Comparing Betaseron and Copaxone

Switching MS treatments has been more of an adjustment than I thought. I figured a shot was a shot was a shot, right? Wrong. In a layman's way, I get how Betaseron and Copaxone are different β€” the former is an interferon that works by reducing the ability of inflammatory cells of the immune system… Continue reading Hit me with your best shot: Comparing Betaseron and Copaxone

Fitness, Healthy eating, Multiple sclerosis, Struggles

Heroes, or how I came to like Montel Williams

Everyone could use a good dose of inspiration now and again. I find it in nature, in words, in music (but not Words & Music), in other people overcoming challenges large and small to make an impact in their little corner of the world. And now, I find inspiration in a certain former daytime TV… Continue reading Heroes, or how I came to like Montel Williams

Multiple sclerosis

Please give

In my mailbox yesterday was one of those nondescript envelopes addressed to me but in that casual handwriting that always gives me pause. I mean, what if it was those name stickers we all get from whatever organization that is each year? Well, maybe this isn't junk junk mail so I'll open it and check… Continue reading Please give

Multiple sclerosis, Struggles, Uncategorized, What was I thinking?

Taking a stand

It's difficult to stand one's ground when the simple act of standing is a feat unto itself. It took all of the Herculean might I could muster (OK, and a high powered energy pill that treats narcolepsy) to hang with the sweaty swarm of humanity for An Evening With Cake. I did, but not without… Continue reading Taking a stand

Multiple sclerosis, What was I thinking?

I will survive

I am equally excited and nervous about tonight. We are headed to Memphis to see Cake. This will be my first live music outing in forever, and certainly the first since my diagnosis. I've taken my "energy pill," the one that keeps me from passing out once the clock strikes 10 or so. I'm Cinderella… Continue reading I will survive

Multiple sclerosis, Struggles, Uncategorized, What was I thinking?

On the skids, or the post in which I talk about showering

One of my greatest (non-existential and non-irrational) fears β€” besides the everyman's dilemma of public speaking β€” is falling out of my shower into a wet, motionless heap. Not only would whoever rescued me find my naked ass splayed across the floor, but they'd see proof positive in my grimy tiles what a terrible domestic… Continue reading On the skids, or the post in which I talk about showering

Multiple sclerosis, Uncategorized

I’ve got baggage

I am about to have a serious logistical problem on my hands, quite literally. Bags, bags, everywhere bags. With me nearly every morning is a filled-to-the brim backpack, a purse, a lunch bag and sometimes even another tote. Why? Because I have a bunch of stuff. And I keep acquiring more stuff. The telltale signs… Continue reading I’ve got baggage