Multiple sclerosis, Uncategorized

The good kind of pain

I empathize, little kids of the world - shots are no fun. They make me want to cry, too. For the past 16 months, I've had a regimen of injections. I've been hooked up to IVs, shoved into scary tubes, endured post-shot reactions that are said to feel like a heart attack. And yet ...… Continue reading The good kind of pain

Multiple sclerosis, Uncategorized

Feeling pretty

I got a haircut the other day for almost the sole purpose of having someone else wash and blow dry my hair. It's been awhile for that type of pampering. Yes, the simple act of fixing my hair has become so frustratingly tedious that I haven't really bothered. Same goes for makeup. The ragmuffin look… Continue reading Feeling pretty

Multiple sclerosis, Uncategorized

Enough about me

I'm sure I've complained enough on here about this recent relapse. Long story short: Yep, still having it. Yep, still bad. Very bad. Yep, still using my right hand for everything (use your imagination there). Because the steroids were a bust this time, it looks like I will be trying another drug, whose name almost… Continue reading Enough about me

Advocacy, Multiple sclerosis

Meeting of the marketing minds

I'm not a PR/marketing person by any stretch of the imagination. When I visualize such people, they are always the polished, perfect, witty, savvy girls with way too white of teeth and outfits that look right out of the magazine. Again, I am not one of them. I'm pretty disheveled, even on a good day. And… Continue reading Meeting of the marketing minds

Multiple sclerosis, Uncategorized

The enemy

Today it takes many forms: Buttons and zippers (are sweatpants considered business casual?) Knobs Graphological apparati (watch the video below) Stairs (had to find that out the not-so-easy way) Plastic baggies Anything that requires manual dexterity Good thing I have: Friends who are always willing to pitch in Family A phone No modesty Rather substantial… Continue reading The enemy

Multiple sclerosis, Struggles

Oh, so this is what it feels like

I'm in the throes of a particularly nasty exacerbation, one compounded by the fact that I don't start my steroid infusion until Monday. So these past few days have been among the worst I've had with MS since being diagnosed. What started as a tiny weakening in my left leg has turned into a unilateral… Continue reading Oh, so this is what it feels like

Multiple sclerosis, Nick, Struggles, What was I thinking?

The year that was

2011 is a year I'd rather leave in the rear-view mirror. I think the world agrees with me. We should have known things were off to an inauspicious start when blackbirds fell dead from the sky on New Year's Eve (of course, that just happened this year, too). The bad had a way of eclipsing the… Continue reading The year that was

Multiple sclerosis, Nick, Uncategorized

Milestones

Today is a big, huge day. In fact, it's probably the MOST IMPORTANT DAY OF THE YEAR, worthy of screaming it in all caps. No, not the end of the Iraq war, although that is pretty significant. Nick graduates from college today with a master's degree. (Happy dance!) To give you an idea of how… Continue reading Milestones

Multiple sclerosis, Uncategorized

Family

You might have seen this video already. Only about 14 million and counting have. It made me cry. Twice. I knew what it was about before I watched it, but what I wasn't prepared for was the part where he talks about his mom having MS. Gulp. In my ideal world, we all have the… Continue reading Family