My friends, do this one thing for me. Take a camera. Take your hands, put them in a low V, as if you were going to play Red Rover and hold hands with two others. Or go ahead and grab two friends. Or four. Or six. All hold hands in a big chain. Have someone… Continue reading This one thing
Category: Multiple sclerosis
My form of optimism
Instead of bemoaning all of the things I can't do, I'm going to start looking at them as things I didn't want to do in the first place. Reject it before it rejects me, right? Anyways, here's some random John Denver goodness for you, courtesy of a car (likely a wood-panel, older model Jeep Cherokee)… Continue reading My form of optimism
March is shaping up to be one mother of a month. I honestly don't know how I will pull it off, from the big DC trip to projects and more projects to MS Awareness Week. I know I said in the beginning that having MS was the universe's way of telling me to slow down.… Continue reading Extraordinary machine
You down with PPC?
As mentioned before, I got involved with the MS Society fairly early after my diagnosis. It's a way to connect with others who share this terrible disease (which somehow makes it not-so terrible), and meet advocates who offer support and expertise. I got to meet with the marketing team for the South Central region to… Continue reading You down with PPC?
On a positive note
MS blows. No doubt about it. But here's to finding the silver lining: Adult naps are not only permissible, they are encouraged. The better parking. Great struggle = great art. See: Van Gogh, Hemingway, so on. Although their demise ... well, still. No more lugging around laundry baskets. Buying more dresses because they don't have… Continue reading On a positive note
Strength in numbers
I have been very fortunate to have a close group of friends to see me through the rough spots with kinds words, encouragement, food and, when needed, margaritas. I have been equally fortunate to have other friends and co-workers and erstwhile acquaintances step up to help in whatever way they can. We may not see… Continue reading Strength in numbers
The hell month
I'm a month into this, my longest exacerbation since being diagnosed with multiple sclerosis in September 2010. I've had flare-ups, but they've all been quickly extinguished by either starting a round of steroids or because the disease-modifying therapy was working. I don't know if I explain just how life-rending these tend to be without sounding… Continue reading The hell month
Yet so worth it. Yes, I'm a fate tempter. And I might have a small, tiny, barely perceptible shoe addiction. I just hope my neuro doesn't see this post. Or my mother.
Behold the human pincushion
I'm not actually this thin. Or pink. But my hair is exactly like this.
Off the merry-go-round
At what age do you start thinking about being older? At 6 when I blew out my birthday candles, I wished to be 10. At 10, I couldn't wait to be 12 and get pointe shoes. At 12, all I wanted to be was 18. At 18, I longed to be 21, of course. But… Continue reading Off the merry-go-round