Multiple sclerosis, Struggles

I hate today

I don't feel special, honored or particularly grateful for much right now. I feel used, stressed and broken. Yes, please tell me that I should change my attitude. I have. Those who have seen me day in and day out know that I try to stay upbeat not dwell on my condition all that much.… Continue reading I hate today

Multiple sclerosis, Struggles, Uncategorized

Staring down the enemy

There's a perfectly rational and not unhealthy reason to fear that which outnumbers you. Bees. Killer ants. Toddlers. Tweens. Stairs. Yes, stairs. I have never been a fan of them. Even in my physical prime (oh, say 16-19, the glory years), I can remember avoiding stairs, always opting for their fun cousin, the escalator. http://www.youtube.com/watch?v=5gwGcP8QbH8… Continue reading Staring down the enemy

Advocacy, Fitness, Multiple sclerosis, Nick

MS Walk 2011

It's in the books. And thanks to my support network, Team Word Herders raised $640, surpassing the goal I set for us and putting us 16th in the top fundraisers. I had an awesome group of people with me for the walk - Nick, Crystal, Shannon, Beth, all of them I've known since college. And… Continue reading MS Walk 2011

Advocacy, Multiple sclerosis

Stepping up

I could never be a fundraiser. It's painful asking for money from others, especially in times like these. Because, if you are anything like me, there's not a whole lot of it these days. After essentials and a mortgage and gas and food and medical bills, what's left? How can I dare ask people to… Continue reading Stepping up

Multiple sclerosis, Struggles

The mother of all pain

Waking up in the middle of the night is never a good omen. Three summers ago, I awoke to the sound of our darling, dying Persian as he succumbed to his illness. It was but a small shriek, sounding like nothing I've ever heard before or since. I wish I could have absorbed his pain,… Continue reading The mother of all pain

Multiple sclerosis, Struggles

Gotcha!

I meant to post this on Friday, when it was applicable. Better late than never, I suppose. And in case you are wondering if I am going to attempt to tie this to MS somehow, the answer is, "Of course I am." Multiple sclerosis is like a big April Fools joke, one that just keeps… Continue reading Gotcha!

Advocacy, Multiple sclerosis, What was I thinking?

Getting the word out

It's harder than it seems. I shouldn't have a problem with public speaking, particularly when the topic is something I'm passionate about like multiple sclerosis. But here I was, amid fellow MSers, activists and lawmakers, at a loss for what to say. The event was a Legislative Luncheon at the state Capitol, put together by… Continue reading Getting the word out

Multiple sclerosis, Nick, Struggles, What was I thinking?

Comedy is tragedy plus time

Funny, they never tell how how long this little formula for humor takes. How much distance you need before the sharp edges of a prickly reality dull somewhat. When it becomes palatable, these painful treatments, the uncertain future, the broken body. Multiple sclerosis is really no laughing matter. But I can have a chuckle at… Continue reading Comedy is tragedy plus time

Nick

Here comes the sun

It's been a dreary few days here. Spring sprang for all of three minutes, that tease. And then rain and cold. Bleak. Blah. So out with the sweaters again. But nothing, not even SAD-inducing weather, is going to put a damper on my life right now. Not even busted NCAA brackets (and if you've seen… Continue reading Here comes the sun