Multiple sclerosis, Nick, Struggles, Uncategorized

Acceptance

So it happened. I became that girl. The sad-sack TTC blogger who has nothing but baby on the brain. Writes ad nauseam about desperately wanting it to happen. It's like that woman gently weeping in the frozen foods section. Your heart goes out to her, you want to console her, but is it ever awkward.… Continue reading Acceptance

Multiple sclerosis, Struggles, Uncategorized

Of poise and fortitude

She sat there, smiling, this wisp of a woman. Her alabaster skin almost translucent, looking thin enough to flake off like onionskin. What hair she still had was frizzy, no so much styled as simply left to hang shaggy at her angular shoulders. Every bone protruded in a way that looked painful, contorted. Her chest… Continue reading Of poise and fortitude

Multiple sclerosis, Uncategorized

How to be hopeful

The very least you can do in your life is to figure out what you hope for. The most you can do is live inside that hope, running down its hallways, touching the walls on both sides. HOPE: AN OWNER'S MANUAL Look, you might as well know, this thing is going to take endless repair:… Continue reading How to be hopeful

Multiple sclerosis, Struggles, Uncategorized

Staring down the enemy

There's a perfectly rational and not unhealthy reason to fear that which outnumbers you. Bees. Killer ants. Toddlers. Tweens. Stairs. Yes, stairs. I have never been a fan of them. Even in my physical prime (oh, say 16-19, the glory years), I can remember avoiding stairs, always opting for their fun cousin, the escalator. http://www.youtube.com/watch?v=5gwGcP8QbH8… Continue reading Staring down the enemy

Multiple sclerosis, Treatment, Uncategorized

Reefer badness

I am intensely curious about the origins of quite random things — from Post-Its and sushi to wooden shoes and certain psychotropic drugs. Really, who was the first person to think that smoking a plant was a good idea? The thought never would have occurred to me. Cannabis sativa. Known colloquially as marijuana. Also goes by pot,… Continue reading Reefer badness

Advocacy, Multiple sclerosis, Uncategorized

Hot off the presses

I was fortunate enough to get to write an article in our statewide newspaper about parents with disabilities (it runs today in the FamilyStyle section). I was even more fortunate to get to talk to two fellow MSers who have been giving this disease hell for far longer than I. It's encouraging to see these comrades… Continue reading Hot off the presses

Multiple sclerosis, Treatment, Uncategorized, What was I thinking?

The shot heard ’round the house

I knew it was bound to happen. Nearly six months into treatment, I am experiencing serious shot fatigue. We've not exactly been vigilant in following the when of the injection here lately. It's supposed to be every other night, but I think we've gone about three days without doing one this past week. The where… Continue reading The shot heard ’round the house

Advocacy, Multiple sclerosis, Uncategorized

Art and advocacy

I have been so privileged in my life to be around the arts — what a supportive, embracing world it can be! I have been dancing since I could string three steps togehter, and kept going all through college. I quit after that, but through my very dear friend and mentor, Jennifer, got back into… Continue reading Art and advocacy

Multiple sclerosis, Struggles, Uncategorized, What was I thinking?

Ramble on

What is it called when you get off an airplane? What is that body of water that is sometimes man-made and doesn't travel? Hell, what is that muscle in the top part of your arm? I've forgotten all of these in the past week. Week, people. Word retrieval has long been the bane of my… Continue reading Ramble on

Advocacy, Multiple sclerosis, Struggles, Uncategorized

Around my world in 180 days

Six months ago today I was in a hospital bed. My legs were these feeble, foreign-feeling abstractions of flesh and bone not living up to their purpose. Just work, dammit! I pleaded to them over and over and over. My head was swimming from a cocktail of steroids and pain medicine. My life had been… Continue reading Around my world in 180 days