This week I signed up on a registry. Not quite the kind I had hoped to do. There are no bottles or strollers or baby accoutrements on this one. This registry is for women who were on Betaseron and got pregnant. I had almost put the whole experience in a box and tucked it in… Continue reading Registries and a new drug
Category: Multiple sclerosis
iWant
We are a consumer culture. We live in a material world, and I am a material girl, especially when it comes as a sleek white shiny gadget. I make no apologies for my love of Apple products, which is deep-rooted. I own nearly every iDevice there is. I design on a Mac, talk on one,… Continue reading iWant
Breaking up is hard to do
Dear High Heels, I can't believe I've even writing this. It has to be one of the toughest decisions I've ever had to make. But this can't go on. The pain I feel when I'm with you is all too apparent now, and I fear that us staying together will only hurt me more. So… Continue reading Breaking up is hard to do
Guest post from my better half
Nick graciously offered to write another guest post today, on our 10th wedding anniversary. I did not have to beg, bargain, cajole, reason, bribe or threaten with bodily harm. Honest! Also, wedding photo to be added as soon as I can find one. Oh, we were so young then! When Jennifer was first diagnosed with… Continue reading Guest post from my better half
C is for …
Copaxone, one of the disease- modifying MS drugs I will soon find myself taking. Also, a Class B drug, which is safe(r) during pregnancy. It almost stood for chemotherapy, which is still on the table if I don't improve and we decide to stop TTC for a few months. It doesn't stand for conception, at… Continue reading C is for …
I used to dance
Maybe I still do. I had to stop dancing a year ago because of symptoms that would later turn out to be MS. It was probably the most heart-breaking part of being diagnosed, so much so I haven't gone back. But I wanted to see what I was still capable of. So enjoy the random… Continue reading I used to dance
Victory is ours!
I pulled into the work parking lot this morning with a little trepidation. Would there be a spot for me? Or would I be parking near the back and limping in? And then I saw them. One, at first. And then two others. Gloriously branded in fresh paint, three new blue-and-white disabled logos greeted me.… Continue reading Victory is ours!
Once more unto the breach
Or, in this case, the MRI, fondly known in my house as the big scary knock-knock machine. It's been a nearly 10 months since my last head check. But this makes MRI No. 8 or so in recent memory. I'm getting to be quite the pro, as the techs pointed out today. No metal? Check.… Continue reading Once more unto the breach
Hot and bothered
The record-shattering temperature where I live was 114 degrees today. That's not a typo. Only Baghdad, Basra and certain lower levels of hell were hotter than here. And, as you can expect, I'm not dealing with it all too well. Starting with the parking lot I went all Towanda on. This morning, Groundhog Day all… Continue reading Hot and bothered
Gaining persepctive from loss
This week was to be the magical week, when we had hoped to be "in the clear," so to speak. We were going to share with our families and friends this weekend that come Valentine's Day, there would be a new Godwin-Walker to introduce to the world. It wasn't to be. Instead of being near… Continue reading Gaining persepctive from loss
One, Wild & Precious 