Today I called to refill my MS treatment, the shot regimen that we hope keeps the worst symptoms at bay for a good, long time. I pin so many of my hopes on that drug, my doctors, and the medical field in general. I won't say how much this treatment would cost me a year… Continue reading Cover me
Category: Multiple sclerosis
Seeing is believing
I went to my eye doctor today, and the circumstances couldn't be more different from the last time I paid the ophthalmologist a visit. For starters, I can see. That wasn't the case six months ago, when my left eye decided to go on hiatus. And now we know the backstory, the genesis of how… Continue reading Seeing is believing
Taking a stand
It's difficult to stand one's ground when the simple act of standing is a feat unto itself. It took all of the Herculean might I could muster (OK, and a high powered energy pill that treats narcolepsy) to hang with the sweaty swarm of humanity for An Evening With Cake. I did, but not without… Continue reading Taking a stand
I will survive
I am equally excited and nervous about tonight. We are headed to Memphis to see Cake. This will be my first live music outing in forever, and certainly the first since my diagnosis. I've taken my "energy pill," the one that keeps me from passing out once the clock strikes 10 or so. I'm Cinderella… Continue reading I will survive
Girl gone wild
It dawned on me tonight, as we were simultaneously pulling off the shot routine along with the get ready for bed routine, that my dining room may not be the most private of places. I sauntered in topless from our bedroom, because, practically speaking, it is easier to give oneself a shot in the stomach… Continue reading Girl gone wild
Sensory deprivation
Ever play the What If game and it gets really, really sobering? Instead of, what if you had a million dollars, it was what if you lose one of your senses? (Yes, I am the worst conversationalist ever - beware party people, I turn dark real quick.) That almost happened to me last year. I… Continue reading Sensory deprivation
Me 3, MS 56
Me and MS have a little game we like to play. I call it Catch Me If You Can, Sucka! The idea is simple: I go about my life as if nothing has changed. Mind over matter, I'm not my disease, and all. I go shopping. I run errands. I go to work. I work… Continue reading Me 3, MS 56
On the skids, or the post in which I talk about showering
One of my greatest (non-existential and non-irrational) fears — besides the everyman's dilemma of public speaking — is falling out of my shower into a wet, motionless heap. Not only would whoever rescued me find my naked ass splayed across the floor, but they'd see proof positive in my grimy tiles what a terrible domestic… Continue reading On the skids, or the post in which I talk about showering
I’ve got baggage
I am about to have a serious logistical problem on my hands, quite literally. Bags, bags, everywhere bags. With me nearly every morning is a filled-to-the brim backpack, a purse, a lunch bag and sometimes even another tote. Why? Because I have a bunch of stuff. And I keep acquiring more stuff. The telltale signs… Continue reading I’ve got baggage
A view from outside
Sometimes, I stand naked in front of a mirror Evaluating Not the paunch or the flab or the dimples (of which there are many) But to gaze in wonder at how everything looks unchanged. Like a cosmonaut suspended in space Observing Earth's serene stillness And thinking the world must always be this constant, from here.… Continue reading A view from outside
One, Wild & Precious 