Multiple sclerosis, Struggles

Not waving but drowning

I'm getting terrifyingly good at masking my struggles with multiple sclerosis. So adept I even hide them from myself. Never underestimate the potency of denial. My carefully constructed facade isn't impenetrable. There are several chinks in my armor, but usually only those closest to me see them, as night sets in and I can barely… Continue reading Not waving but drowning

Multiple sclerosis

Boy crazy

* UPDATE* Signing day went fine, save for a few hiccups. But the more I work, the less I feel that I can keep up this pace. The occasional 12-hour day is fine, but I've had more than I care to remember. Part of it is me, but part of it is the job. I… Continue reading Boy crazy

Multiple sclerosis, Struggles

Dancing in the rain

Sweet sentiment, but have you ever really tried it? What a load of hooey. You get wet, and depending on the season, cold. And it might ruin your shoes. Definitely your hair. Maybe I'm too macabre for my own good, but for me it conjures up a scene from Bram Stoker's Dracula that, after our… Continue reading Dancing in the rain

Multiple sclerosis, Struggles, Treatment

CCSVI’m confused

I'm not a doctor. I don't play one on TV, either. So to say I'm flummoxed by multiple sclerosis, in a clinical sense, is an understatement. Which makes me like most laymen, but also those like above-average doctors, who have been searching for a cause/treatment/cure to MS for at least 150 years and have yet… Continue reading CCSVI’m confused

Multiple sclerosis, Struggles

Ch-ch-ch-ch-changes

The only constant is change. But it strikes me just how whirlwind the metamorphosis has been the past few months, for everyone around me. Two friends have taken huge leaps for careers. My besties had twins the day after I went into the hospital in September. Other friends are due any day now. And another… Continue reading Ch-ch-ch-ch-changes

Multiple sclerosis

Please give

In my mailbox yesterday was one of those nondescript envelopes addressed to me but in that casual handwriting that always gives me pause. I mean, what if it was those name stickers we all get from whatever organization that is each year? Well, maybe this isn't junk junk mail so I'll open it and check… Continue reading Please give

Multiple sclerosis, Uncategorized

Cover me

Today I called to refill my MS treatment, the shot regimen that we hope keeps the worst symptoms at bay for a good, long time. I pin so many of my hopes on that drug, my doctors, and the medical field in general. I won't say how much this treatment would cost me a year… Continue reading Cover me

Multiple sclerosis, Uncategorized

Seeing is believing

I went to my eye doctor today, and the circumstances couldn't be more different from the last time I paid the ophthalmologist a visit. For starters, I can see. That wasn't the case six months ago, when my left eye decided to go on hiatus. And now we know the backstory, the genesis of how… Continue reading Seeing is believing

Multiple sclerosis, Struggles, Uncategorized, What was I thinking?

Taking a stand

It's difficult to stand one's ground when the simple act of standing is a feat unto itself. It took all of the Herculean might I could muster (OK, and a high powered energy pill that treats narcolepsy) to hang with the sweaty swarm of humanity for An Evening With Cake. I did, but not without… Continue reading Taking a stand