It's been awhile since I've posted about music. Or posted at all. Quick recap ... The good: Fall! Pumpkin spice latte! Car bumper fixed! Weekend trip to Dallas! Corn chowder time! More pumpkin spice latte! The bad: Copaxone leaving huge welts. Left hand numb. Fatigue a beast. And ... back to music. R.E.M. broke up… Continue reading Hold on … hold on
Category: Struggles
Being sick on top of being sick
I've been fighting a nasty cold here lately. Like radioactive green stuff coming out of my nose kind of cold. It's really the first time I've been sick in a year, which, coincidentally, is how long I've been living with MS. And let me say, for the record, it f#4@*)&g suuuuuuuuuucks. I don't recommend. I… Continue reading Being sick on top of being sick
Registries and a new drug
This week I signed up on a registry. Not quite the kind I had hoped to do. There are no bottles or strollers or baby accoutrements on this one. This registry is for women who were on Betaseron and got pregnant. I had almost put the whole experience in a box and tucked it in… Continue reading Registries and a new drug
C is for …
Copaxone, one of the disease- modifying MS drugs I will soon find myself taking. Also, a Class B drug, which is safe(r) during pregnancy. It almost stood for chemotherapy, which is still on the table if I don't improve and we decide to stop TTC for a few months. It doesn't stand for conception, at… Continue reading C is for …
Hot and bothered
The record-shattering temperature where I live was 114 degrees today. That's not a typo. Only Baghdad, Basra and certain lower levels of hell were hotter than here. And, as you can expect, I'm not dealing with it all too well. Starting with the parking lot I went all Towanda on. This morning, Groundhog Day all… Continue reading Hot and bothered
Gaining persepctive from loss
This week was to be the magical week, when we had hoped to be "in the clear," so to speak. We were going to share with our families and friends this weekend that come Valentine's Day, there would be a new Godwin-Walker to introduce to the world. It wasn't to be. Instead of being near… Continue reading Gaining persepctive from loss
The day I went all Towanda on the world
That would be today, when I pulled in to my work parking lot at 8:45 and discovered all of the handicap spots were already taken. And so I called the business that owns the parking lot and asked what the chances were that they would designate more spots for disabled people. This isn't the first… Continue reading The day I went all Towanda on the world
Be advised
Excessive heat plus hormones aggravated by MS is an extremely volatile mixture. It produces a mindset not unlike that of a psychopath. Thus, I cannot be held accountable for any of my actions or comments in the next couple of weeks. Starting, well, right now. I know, I look so harmless on the surface. A… Continue reading Be advised
Something is not right with me
So I might be (definitely) having a flare-up (pain and numbness of indescribable proportions). Damn. I am off my therapy for now. We knew that was the risk going in. I gambled and the house won. And now I'm back to Square 1, MS-speaking, if I could just drag my useless left leg to that… Continue reading Something is not right with me
Big gulp
Believe it or not, there are some aspects of living with multiple sclerosis I have yet to write about. So far I haven't had any of the, ahem, bathroom issues. And I would like to think that I would spare myself and others the mortifying experience of actually sharing that if I did. Then again,… Continue reading Big gulp
One, Wild & Precious 