Multiple sclerosis, Struggles

Something is not right with me

So I might be (definitely) having a flare-up (pain and numbness of indescribable proportions).


I am off my therapy for now. We knew that was the risk going in. I gambled and the house won.

And now I’m back to Square 1, MS-speaking, if I could just drag my useless left leg to that box.

I can’t adequately put into words what this feels like.

Raw nerves is how I first described the contradictory symptoms of numbness and pain.

I have the ability to feel pressure but not texture or temperature.

You know when you get in too cold of water, that electric shock that ricochets through your entire system? That’s the closest universal feeling that I can come up with, if you want a comparison.

That’s what is happening in my leg right now. And, ummm, higher.

Like so much else here, this is probably more than you wanted to know.

Stop reading right now and go look at cats in pigtails if bathroom talk bothers you.

Still here? Don’t say I didn’t warn you.

Suffice it to say that me and the porcelain throne have been pretty much inseparable. Because of the numbness, I can’t tell if I’ve voided, to get all clinical with it. So I go. And try to go, with mixed success. Are you there, pee? It’s me, Jennifer.

There’s not much by way of a remedy. I suppose I could just give up and wear some uber-attractive adult undergarmets. (Hey, they’re not just for crazy astronauts!) Poise can help me keep mine, right?

Exacerbations can last days, weeks, even months. Because I won’t be going back on my treatment for now, my only other option is an IV steroid infusion.

I’m hoping it doesn’t come to that, either.



3 thoughts on “Something is not right with me”

  1. Thinking of you Jennifer! Give me a call if you need anything or just want to talk. I can only imagine how much an exacerbation like this bites.

  2. It sounds like you’re having one of those times, during which I say, “I can’t believe this is my life.” And, yeah, I cry, too. I hope things look up for you. No one deserves this.

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