Me and MS have a little game we like to play. I call it Catch Me If You Can, Sucka! The idea is simple: I go about my life as if nothing has changed. Mind over matter, I'm not my disease, and all. I go shopping. I run errands. I go to work. I work… Continue reading Me 3, MS 56
Category: Nick
Dealing with a person dealing with MS: A quick primer
There's no What to Expect when You Have Multiple Sclerosis guidebook. If there was, it would be about a page long. All it would need to say is something to the effect of, "Hold back the edges of your gowns, ladies....we're going through hell." Or, just as succinctly put, it would advise patients to "expect… Continue reading Dealing with a person dealing with MS: A quick primer
Down for the count
It's the beginning of the 2011 Sickoff at the Godwin-Walker household. Who will make it to the top of the snotty tissue podium? Who will be the also-ran left hugging the porcelain bowl? I fired the opening salvo Saturday night with a 14-hour (!!!) comatose state, prefaced by an irritating cough, stobbed up nose and… Continue reading Down for the count
Wordless (yeah, right) Wednesday: Day by day
If there's one thing I love about the new year, it's new calendars! I have quite an unhealthy obsession with office supplies, so paper products are right up my alley. Nick let me indulge by getting not one but TWO calendars for this coming year. It helps when they are already half off. The biggest… Continue reading Wordless (yeah, right) Wednesday: Day by day
Oh, mercurial me
MS is a tricky little bugger. The symptoms are as individual as the person who has it, and even then they are as fickle as the day is long. So far, I've had hot legs, cold legs, numb legs, numb hands, tingly body parts, rebellious body parts, dysfunctional body parts. Which has led to many… Continue reading Oh, mercurial me
Season’s greetings! (an exercise in caustic humor)
Ahhhh, the family Christmas newsletter. A little festive missive sharing good tidings with friends and family that just barely masks the smugness of how great a year it's been for all in your perfect little life. Paying homage to David Sedaris — with a nod to the tongue-in-cheekness but falling well short of his creative… Continue reading Season’s greetings! (an exercise in caustic humor)
Guest post!
Nick has taken over the blog today to write about MS from his perspective. I love this man more than my luggage and am grateful for him each and every day. And he's a damn fine writer, too. Jennifer accuses me of being naïve because I’m constantly looking to the future and thinking about how… Continue reading Guest post!
What a prick
No, not my husband. Although he is the one administering it. When I first found out about my treatment options for MS, it was a daily shot or an every-other-day shot. No namby pamby pills for this disease (Oh, but wait! There are pills, too.). It's hard-core you suck it up and give yourself a… Continue reading What a prick
When your mourning has a sound
This song gets to me. In a big way. "Heirloom" by Sufjan Stevens. Lyrics: When your heirloom’s wilted brown When the devil’s pushing down When your mourning has a sound And you hesitate to laugh How quickly will your joy pass How quickly will your joy pass And when you walk inside I feel the… Continue reading When your mourning has a sound
Competing diagnoses
The week I wound up in the hospital began on a Sunday when we went to a friend's house for an afternoon gathering and I was so weak I sat the whole time, which isn't like me. I thought I might be coming down with something. And that's when we came up with Diagnosis #1:… Continue reading Competing diagnoses
One, Wild & Precious 