Multiple sclerosis

Lucky

I watched snippets of the Gabby Giffords special last night. Because I'm in a hyper-emotional state (darn hormones), I sniffled my way through most of them. Her and husband Mark Kelly's message of hope and courage, of perseverance and patience, was inspiring, sure, but also got me thinking. Her recovery has been remarkable, and she… Continue reading Lucky

Multiple sclerosis, Nick, Struggles

The need equation

I think one of the reasons Nick and I get along so famously is that we both lean on each other about the same. It certainly can't hurt. He brings me coffee and cleans the litterboxes and there should really be another sweet gesture in between those two. And I ... well, I make things… Continue reading The need equation

Multiple sclerosis, Treatment

Magical thinking

I've pretty much stayed on the conventional medicine path for my ailments, whether it be bronchitis (Z-Pac to the rescue!) or multiple sclerosis (interferons). I mean, remember my early research into MS treatments? Much has been made this past week about Steve Jobs' decision to forgo surgery and use alternative therapies to treat his pancreatic… Continue reading Magical thinking

Nick

In bed at night

He cups my hands in his hands And I feel the rough edges The calloused parts The history of us In that instant   And I take his hands in my hands Trace the love line and life line Find my favorite constellation of freckles The future of us In that instant      … Continue reading In bed at night

Multiple sclerosis, Struggles

Excuses, excuses

I haven't been posting regularly, which could be read as bad and good. Good, because it means I have nothing to complain about, which supposes that the worst of MS has retreated for now (the remitting part of relapsing/remitting). Bad, because of course there are topics to talk about — it's been a busy month.… Continue reading Excuses, excuses

Multiple sclerosis, Treatment

Double B

I've taken my health into my own hands. Which is to say my shot regimen has changed a bit. Instead of stomach, leg, leg, arm, arm, cheek, cheek, I've decided to go stomach, stomach, stomach, cheek, cheek, cheek, cheek. Head, shoulders knees and toes, knees and toes. If only there were a catchy song for… Continue reading Double B

Advocacy, Multiple sclerosis

Nobelists were cell searchers

The three men who won the Nobel Prize in Physiology or Medicine worked to figure out why cells act (and react) as they do. Sadly, one of the scientists, Ralph Steinman, died just three days ago of pancreatic cancer. His research has been crucial in understanding why the immune system sometimes goes on the attack, even… Continue reading Nobelists were cell searchers

Multiple sclerosis, Struggles, What was I thinking?

Lofty goals

So a woman with multiple sclerosis has trekked Mount Everest? And here I whine about the elevators being out at my office for the second day in a row. Three floors, nearly thirty thousand feet. Really, what's the difference?

Multiple sclerosis

Chin up

Learning to cope is an acquired skill, one that takes several stabs before getting the hang of it. I still haven't grasped it entirely. Like my movements on those really off days, my coping strategy is a bit clunky and unrefined. I just finished back-to-back reading of two memoirs on multiple sclerosis - 'Fall Down… Continue reading Chin up

Multiple sclerosis, Struggles

Hold on … hold on

It's been awhile since I've posted about music. Or posted at all. Quick recap ... The good: Fall! Pumpkin spice latte! Car bumper fixed! Weekend trip to Dallas! Corn chowder time! More pumpkin spice latte! The bad: Copaxone leaving huge welts. Left hand numb. Fatigue a beast. And ... back to music. R.E.M. broke up… Continue reading Hold on … hold on