MS blows. No doubt about it. But here's to finding the silver lining: Adult naps are not only permissible, they are encouraged. The better parking. Great struggle = great art. See: Van Gogh, Hemingway, so on. Although their demise ... well, still. No more lugging around laundry baskets. Buying more dresses because they don't have… Continue reading On a positive note
Author: Jenn Godwin
Competing advocacies
There are hundreds of worthy causes out there all vying for your attention and dollars. I am but one voice in the chorus beseeching you to donate your time, effort and money. Not content to just live in shame with this disease, I became an MS advocate fairly early on in my diagnosis. I blogged… Continue reading Competing advocacies
Strength in numbers
I have been very fortunate to have a close group of friends to see me through the rough spots with kinds words, encouragement, food and, when needed, margaritas. I have been equally fortunate to have other friends and co-workers and erstwhile acquaintances step up to help in whatever way they can. We may not see… Continue reading Strength in numbers
The hell month
I'm a month into this, my longest exacerbation since being diagnosed with multiple sclerosis in September 2010. I've had flare-ups, but they've all been quickly extinguished by either starting a round of steroids or because the disease-modifying therapy was working. I don't know if I explain just how life-rending these tend to be without sounding… Continue reading The hell month
So dangerous
Yet so worth it. Yes, I'm a fate tempter. And I might have a small, tiny, barely perceptible shoe addiction. I just hope my neuro doesn't see this post. Or my mother.
Behold the human pincushion
I'm not actually this thin. Or pink. But my hair is exactly like this.
Lhermitte’s sign
Most of the posts I've written have been pretty self-serving in that they are a way I work through multiple sclerosis. It's cathartic much of the time. But I feel like I'm doing a disservice if I don't explain certain symptoms and my experience with them. Cue the latest: Lhermitte’s sign. Also called the barber… Continue reading Lhermitte’s sign
Off the merry-go-round
At what age do you start thinking about being older? At 6 when I blew out my birthday candles, I wished to be 10. At 10, I couldn't wait to be 12 and get pointe shoes. At 12, all I wanted to be was 18. At 18, I longed to be 21, of course. But… Continue reading Off the merry-go-round
The good kind of pain
I empathize, little kids of the world - shots are no fun. They make me want to cry, too. For the past 16 months, I've had a regimen of injections. I've been hooked up to IVs, shoved into scary tubes, endured post-shot reactions that are said to feel like a heart attack. And yet ...… Continue reading The good kind of pain
Feeling pretty
I got a haircut the other day for almost the sole purpose of having someone else wash and blow dry my hair. It's been awhile for that type of pampering. Yes, the simple act of fixing my hair has become so frustratingly tedious that I haven't really bothered. Same goes for makeup. The ragmuffin look… Continue reading Feeling pretty
One, Wild & Precious 