I've never much noticed whether any quizzical, judgmental glances are thrown in my general direction when I break out my placard and park in a handicapped spot. To the casual observer, I look to be in good shape besides needing to shed like 50 (OK, 75) pounds. Most days, I display no obvious symptoms. I… Continue reading Not disabled enough
Yes, I went dormant for a couple of months. No, I'm not falling apart. Yes, the triple-digit heat is a tad miserable. No, "they" won't install misting tents every 50 feet for my convenience. Yes, I heard about Jack Osbourne. No, I didn't watch his mom cry about it on The Talk. OK, maybe once.… Continue reading Why hello, stranger
I will be the first to admit that I won't be strutting down a catwalk anytime soon. This body of mine, while huggable and sometimes strong, isn't model material. I know and accept this as a universal truth, much like I acknowledge that the sun rises in the east, and Charlize Theron is an alien… Continue reading Vanity, thy name is …
What a whirlwind week it has been. I was honored to take part in the National Multiple Sclerosis Society's Public Policy Conference in Washington, D.C., these past few days. Activists from around the country met for two days of rigorous training and discussions, and then the society let us loose on the Hill to talk… Continue reading 21st PPC is in the books!
You ask any organization what its biggest resource is, and the obvious answer will be people. Not just staff, although they are the lynchpins to a nonprofit's cause, but volunteers. How to educate, motivate and mobilize those volunteers takes a Herculean effort. Some would say it's Sisyphean. But I'm not listening to those naysayers. Maybe… Continue reading People power
My friends, do this one thing for me. Take a camera. Take your hands, put them in a low V, as if you were going to play Red Rover and hold hands with two others. Or go ahead and grab two friends. Or four. Or six. All hold hands in a big chain. Have someone… Continue reading This one thing
Instead of bemoaning all of the things I can't do, I'm going to start looking at them as things I didn't want to do in the first place. Reject it before it rejects me, right? Anyways, here's some random John Denver goodness for you, courtesy of a car (likely a wood-panel, older model Jeep Cherokee)… Continue reading My form of optimism
March is shaping up to be one mother of a month. I honestly don't know how I will pull it off, from the big DC trip to projects and more projects to MS Awareness Week. I know I said in the beginning that having MS was the universe's way of telling me to slow down.… Continue reading Extraordinary machine
As mentioned before, I got involved with the MS Society fairly early after my diagnosis. It's a way to connect with others who share this terrible disease (which somehow makes it not-so terrible), and meet advocates who offer support and expertise. I got to meet with the marketing team for the South Central region to… Continue reading You down with PPC?
MS blows. No doubt about it. But here's to finding the silver lining: Adult naps are not only permissible, they are encouraged. The better parking. Great struggle = great art. See: Van Gogh, Hemingway, so on. Although their demise ... well, still. No more lugging around laundry baskets. Buying more dresses because they don't have… Continue reading On a positive note