Advocacy, Multiple sclerosis

21st PPC is in the books!

What a whirlwind week it has been. I was honored to take part in the National Multiple Sclerosis Society's Public Policy Conference in Washington, D.C., these past few days. Activists from around the country met for two days of rigorous training and discussions, and then the society let us loose on the Hill to talk… Continue reading 21st PPC is in the books!

Advocacy, Multiple sclerosis

People power

You ask any organization what its biggest resource is, and the obvious answer will be people. Not just staff, although they are the lynchpins to a nonprofit's cause, but volunteers. How to educate, motivate and mobilize those volunteers takes a Herculean effort. Some would say it's Sisyphean. But I'm not listening to those naysayers. Maybe… Continue reading People power

Advocacy, Multiple sclerosis

You down with PPC?

As mentioned before, I got involved with the MS Society fairly early after my diagnosis. It's a way to connect with others who share this terrible disease (which somehow makes it not-so terrible), and meet advocates who offer support and expertise. I got to meet with the marketing team for the South Central region to… Continue reading You down with PPC?

Multiple sclerosis

On a positive note

MS blows. No doubt about it. But here's to finding the silver lining: Adult naps are not only permissible, they are encouraged. The better parking. Great struggle = great art. See: Van Gogh, Hemingway, so on. Although their demise ... well, still. No more lugging around laundry baskets. Buying more dresses because they don't have… Continue reading On a positive note

Multiple sclerosis, Uncategorized

Strength in numbers

I have been very fortunate to have a close group of friends to see me through the rough spots with kinds words, encouragement, food and, when needed, margaritas. I have been equally fortunate to have other friends and co-workers and erstwhile acquaintances step up to help in whatever way they can. We may not see… Continue reading Strength in numbers