Archive for the ‘Multiple sclerosis’ Category
Orange crush
It’s MS Awareness Week, and I’ve nearly succeeded in proudly donning our signature color every single day. Funny how orange, which I once associated with the MS prison I felt locked up in, now has a different connotation. I see the color as one of power, strength, resilience, solidarity. I wasn’t able to make it […]
Filed under: Advocacy, Multiple sclerosis | 2 Comments
Tags: multiple sclerosis, National Multiple Sclerosis Society, orange advocacy
When we last left off, our heroine was fumbling over her myriad passwords and tolerating the brutal Arkansas summer with aplomb, whatever that is. As the months ticked by, she bravely trudged on, juggling her jobs and home life and health. On the MS front, things are pretty OK. Not perfect, no. That would require […]
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Is it just me?
I can’t decide whether I’m a victim of my own technophilia or the scrubbing-bubbles effect MS can have on the brain. Lately, it’s logins. I have nearly four dozen of them, all told. Two I know by heart. The rest are a confusing heap of random qwertiness that leaves me grasping at straws for the […]
Filed under: Multiple sclerosis, Struggles, What was I thinking? | 5 Comments
Not disabled enough
I’ve never much noticed whether any quizzical, judgmental glances are thrown in my general direction when I break out my placard and park in a handicapped spot. To the casual observer, I look to be in good shape besides needing to shed like 50 (OK, 75) pounds. Most days, I display no obvious symptoms. I […]
Filed under: Multiple sclerosis, Struggles | 3 Comments
Vanity, thy name is …
I will be the first to admit that I won’t be strutting down a catwalk anytime soon. This body of mine, while huggable and sometimes strong, isn’t model material. I know and accept this as a universal truth, much like I acknowledge that the sun rises in the east, and Charlize Theron is an alien […]
Filed under: Multiple sclerosis | 3 Comments
21st PPC is in the books!
What a whirlwind week it has been. I was honored to take part in the National Multiple Sclerosis Society’s Public Policy Conference in Washington, D.C., these past few days. Activists from around the country met for two days of rigorous training and discussions, and then the society let us loose on the Hill to talk […]
Filed under: Advocacy, Multiple sclerosis | 4 Comments
People power
You ask any organization what its biggest resource is, and the obvious answer will be people. Not just staff, although they are the lynchpins to a nonprofit’s cause, but volunteers. How to educate, motivate and mobilize those volunteers takes a Herculean effort. Some would say it’s Sisyphean. But I’m not listening to those naysayers. Maybe […]
Filed under: Advocacy, Multiple sclerosis | 1 Comment
This one thing
My friends, do this one thing for me. Take a camera. Take your hands, put them in a low V, as if you were going to play Red Rover and hold hands with two others. Or go ahead and grab two friends. Or four. Or six. All hold hands in a big chain. Have someone […]
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My form of optimism
Instead of bemoaning all of the things I can’t do, I’m going to start looking at them as things I didn’t want to do in the first place. Reject it before it rejects me, right? Anyways, here’s some random John Denver goodness for you, courtesy of a car (likely a wood-panel, older model Jeep Cherokee) […]
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Extraordinary machine
March is shaping up to be one mother of a month. I honestly don’t know how I will pull it off, from the big DC trip to projects and more projects to MS Awareness Week. I know I said in the beginning that having MS was the universe’s way of telling me to slow down. […]
Filed under: Multiple sclerosis | 2 Comments
