Archive for February, 2012
This one thing
My friends, do this one thing for me. Take a camera. Take your hands, put them in a low V, as if you were going to play Red Rover and hold hands with two others. Or go ahead and grab two friends. Or four. Or six. All hold hands in a big chain. Have someone […]
Filed under: Advocacy, Multiple sclerosis | Leave a Comment
My form of optimism
Instead of bemoaning all of the things I can’t do, I’m going to start looking at them as things I didn’t want to do in the first place. Reject it before it rejects me, right? Anyways, here’s some random John Denver goodness for you, courtesy of a car (likely a wood-panel, older model Jeep Cherokee) […]
Filed under: Multiple sclerosis | Leave a Comment
Extraordinary machine
March is shaping up to be one mother of a month. I honestly don’t know how I will pull it off, from the big DC trip to projects and more projects to MS Awareness Week. I know I said in the beginning that having MS was the universe’s way of telling me to slow down. […]
Filed under: Multiple sclerosis | 2 Comments
You down with PPC?
As mentioned before, I got involved with the MS Society fairly early after my diagnosis. It’s a way to connect with others who share this terrible disease (which somehow makes it not-so terrible), and meet advocates who offer support and expertise. I got to meet with the marketing team for the South Central region to […]
Filed under: Advocacy, Multiple sclerosis | 2 Comments
On a positive note
MS blows. No doubt about it. But here’s to finding the silver lining: Adult naps are not only permissible, they are encouraged. The better parking. Great struggle = great art. See: Van Gogh, Hemingway, so on. Although their demise … well, still. No more lugging around laundry baskets. Buying more dresses because they don’t have […]
Filed under: Multiple sclerosis | 3 Comments
Competing advocacies
There are hundreds of worthy causes out there all vying for your attention and dollars. I am but one voice in the chorus beseeching you to donate your time, effort and money. Not content to just live in shame with this disease, I became an MS advocate fairly early on in my diagnosis. I blogged […]
Filed under: Advocacy | 1 Comment
Strength in numbers
I have been very fortunate to have a close group of friends to see me through the rough spots with kinds words, encouragement, food and, when needed, margaritas. I have been equally fortunate to have other friends and co-workers and erstwhile acquaintances step up to help in whatever way they can. We may not see […]
Filed under: Uncategorized | Leave a Comment
The hell month
I’m a month into this, my longest exacerbation since being diagnosed with multiple sclerosis in September 2010. I’ve had flare-ups, but they’ve all been quickly extinguished by either starting a round of steroids or because the disease-modifying therapy was working. I don’t know if I explain just how life-rending these tend to be without sounding […]
Filed under: Multiple sclerosis, Struggles | 7 Comments
So dangerous
Yet so worth it. Yes, I’m a fate tempter. And I might have a small, tiny, barely perceptible shoe addiction. I just hope my neuro doesn’t see this post. Or my mother.
Filed under: Multiple sclerosis, What was I thinking? | 2 Comments
