I'm not actually this thin. Or pink. But my hair is exactly like this.
Month: January 2012
Lhermitte’s sign
Most of the posts I've written have been pretty self-serving in that they are a way I work through multiple sclerosis. It's cathartic much of the time. But I feel like I'm doing a disservice if I don't explain certain symptoms and my experience with them. Cue the latest: Lhermitte’s sign. Also called the barber… Continue reading Lhermitte’s sign
Off the merry-go-round
At what age do you start thinking about being older? At 6 when I blew out my birthday candles, I wished to be 10. At 10, I couldn't wait to be 12 and get pointe shoes. At 12, all I wanted to be was 18. At 18, I longed to be 21, of course. But… Continue reading Off the merry-go-round
The good kind of pain
I empathize, little kids of the world - shots are no fun. They make me want to cry, too. For the past 16 months, I've had a regimen of injections. I've been hooked up to IVs, shoved into scary tubes, endured post-shot reactions that are said to feel like a heart attack. And yet ...… Continue reading The good kind of pain
Feeling pretty
I got a haircut the other day for almost the sole purpose of having someone else wash and blow dry my hair. It's been awhile for that type of pampering. Yes, the simple act of fixing my hair has become so frustratingly tedious that I haven't really bothered. Same goes for makeup. The ragmuffin look… Continue reading Feeling pretty
Enough about me
I'm sure I've complained enough on here about this recent relapse. Long story short: Yep, still having it. Yep, still bad. Very bad. Yep, still using my right hand for everything (use your imagination there). Because the steroids were a bust this time, it looks like I will be trying another drug, whose name almost… Continue reading Enough about me
Meeting of the marketing minds
I'm not a PR/marketing person by any stretch of the imagination. When I visualize such people, they are always the polished, perfect, witty, savvy girls with way too white of teeth and outfits that look right out of the magazine. Again, I am not one of them. I'm pretty disheveled, even on a good day. And… Continue reading Meeting of the marketing minds
The bestest
Proof positive that I have the best support system a gimp-armed girl could ask for.
The enemy
Today it takes many forms: Buttons and zippers (are sweatpants considered business casual?) Knobs Graphological apparati (watch the video below) Stairs (had to find that out the not-so-easy way) Plastic baggies Anything that requires manual dexterity Good thing I have: Friends who are always willing to pitch in Family A phone No modesty Rather substantial… Continue reading The enemy
Oh, so this is what it feels like
I'm in the throes of a particularly nasty exacerbation, one compounded by the fact that I don't start my steroid infusion until Monday. So these past few days have been among the worst I've had with MS since being diagnosed. What started as a tiny weakening in my left leg has turned into a unilateral… Continue reading Oh, so this is what it feels like
One, Wild & Precious 