Struggles

Oh, April

You have outdone yourself, really. You started with such promise (a successful prank on Day 1, the MS Walk on April 9). Then you showed your true colors. From the capricious reproductive system to the stormy birthday, things got rough fairly quick. If there was a so-called bright spot with you, it's that there isn't… Continue reading Oh, April

Multiple sclerosis, Struggles, Uncategorized

Of poise and fortitude

She sat there, smiling, this wisp of a woman. Her alabaster skin almost translucent, looking thin enough to flake off like onionskin. What hair she still had was frizzy, no so much styled as simply left to hang shaggy at her angular shoulders. Every bone protruded in a way that looked painful, contorted. Her chest… Continue reading Of poise and fortitude

Multiple sclerosis, Struggles

April is the cruelest month

Mixing memory and desire. It was this time last year that I knew something was amiss.  There was an inkling of trouble that barely registered in my busy life, but it was there. Had I paused for longer to analyze it, would it have mattered? It was this time last year I was late. You… Continue reading April is the cruelest month

Multiple sclerosis, Nick

A shot in the dark?

Nope. Didn't happen. Turns out I will use any excuse not to take my medicine. I'm like a 3-year-old that way. With another round of spring storms stomping through central Arkansas, we were a little more prepared last night for the onslaught. Or so we thought. Power out at 8. We hadn't even made dinner.… Continue reading A shot in the dark?

Multiple sclerosis, Uncategorized

How to be hopeful

The very least you can do in your life is to figure out what you hope for. The most you can do is live inside that hope, running down its hallways, touching the walls on both sides. HOPE: AN OWNER'S MANUAL Look, you might as well know, this thing is going to take endless repair:… Continue reading How to be hopeful

Multiple sclerosis, Struggles

I’ve got some explaining to do

And that, folks, is called a meltdown. A crying jag (OK, several) at work despite my friends buying me lunch, another friend delivering the most adorable cake-pop basket and stargazers from my husband. Despite the fact that I'm alive, I can put food on the table and gas in my car. That I have dear… Continue reading I’ve got some explaining to do

Multiple sclerosis, Struggles

I hate today

I don't feel special, honored or particularly grateful for much right now. I feel used, stressed and broken. Yes, please tell me that I should change my attitude. I have. Those who have seen me day in and day out know that I try to stay upbeat not dwell on my condition all that much.… Continue reading I hate today

Multiple sclerosis, Struggles, Uncategorized

Staring down the enemy

There's a perfectly rational and not unhealthy reason to fear that which outnumbers you. Bees. Killer ants. Toddlers. Tweens. Stairs. Yes, stairs. I have never been a fan of them. Even in my physical prime (oh, say 16-19, the glory years), I can remember avoiding stairs, always opting for their fun cousin, the escalator. http://www.youtube.com/watch?v=5gwGcP8QbH8… Continue reading Staring down the enemy

Advocacy, Fitness, Multiple sclerosis, Nick

MS Walk 2011

It's in the books. And thanks to my support network, Team Word Herders raised $640, surpassing the goal I set for us and putting us 16th in the top fundraisers. I had an awesome group of people with me for the walk - Nick, Crystal, Shannon, Beth, all of them I've known since college. And… Continue reading MS Walk 2011

Advocacy, Multiple sclerosis

Stepping up

I could never be a fundraiser. It's painful asking for money from others, especially in times like these. Because, if you are anything like me, there's not a whole lot of it these days. After essentials and a mortgage and gas and food and medical bills, what's left? How can I dare ask people to… Continue reading Stepping up